Just a little CONSerned

Common Sense & Family Matters

Hope For Stacy – Car Wash Oct 10-11 @ The Brick 1525 Pitt st Cornwall

staceI’d like you all to meet my daughter Stacy. In almost every respect she is a normal 18 yr old going to high school, planning for college, and occasionally doing things that Mom and Dad are not so crazy about. Stacy has a wild sense of humor and is a very strong young woman, and she even likes Bob Marley. But all is not right in Stacy’s world. She was born with SMA. Spinal Muscular Atrophy is a form of MD and degenerates motor neurons. Basically it is like a road block at the spinal cord that prevents any stimulation of muscle growth. Stacy is only capable of doing the most simplest of tasks. But even brushing her teeth or drinking a glass of water has it’s challenges. Most of what we all take for granted is beyond her ability, and it always has been.

We have been following the introduction of stem cell treatments for some time now, and though they are not available in Canada or the United States yet they are available in other places. The cost of these treatments is not cheap, and we have told that it involves 4 injections over a period of 4 weeks. Another place one 3 hour treatment every 6 months. After speaking to other people who have made the journey and had positive results we have decided to try and make it possible to provide Stacy with this opportunity to get “something” more than what she has. Even if it is the ability to roll herself over in the middle of the night. Any more independence that she can get would be a miracle.

Increased range of motion and overall strength and energy has been reported after receiving the injections. But the cost of this treatment is out of our capabilities. Including airfare, lodging and the injections themselves it is upwards of $26,000-$40,000. We have started a fund at the Royal Bank under the name “Hope For Stacy” and donations can be made to that fund at any RBC.

Over the next year or so we will be holding many such events and fundraisers to try and provide Stacy with this opportunity. We need volunteers, equipment, t-shirts, and all sorts of various items to put these types of things on. If you would like to get involved please contact me at admin@hopeforstacy.ca or show up at one of the events we have planned, we could use all the help we can get.

A very big thank you to Domino’s Pizza 1916 Pitt St who have generously offered to donate some pizza for the volunteers. Your support is greatly appreciated! And to Brian at THE BRICK 1525 Pitt St without you it would not have been possible. When other people and locations said no you stepped up and offered us a great location, thank you so much!

Update

The local story in the paper has generated a lot of interest in Stacy’s story. Ron Begg has offered to interview Stacy on his Cogeco cable TV program. Jason Christoff, who is the owner of “Physical Limits” has offered some memberships to aid Stacy’s cause. One of our readers and good friend has pledged 2 one week get-away packages to their villa in Mexico. We will be planning a dance and other larger events later in the year. See you all this weekend at the car wash!

October 10th. The Car Wash went very well with a lot of people stopping to give their support for Stacy and we raised $240 today! Thank you everyone that stopped by! We will be back out there tomorrow to do it all over again and hopefully do even better! We are on the way to making this a reality for Stacy.

October 14th. Stacy was on live Cable TV today. The program is called “I Begg your Pardon” and airs on Cogeco. Ron was nice enough to have us on the program and has pledged his support to help Stacy reach her goal. We appreciate the support and are very grateful 🙂

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October 4, 2009, 10:36 AM - Posted by | All News

52 Comments »

  1. Trying to catch up… Just saw this. What wonderful idea’s. Stacy is beautiful. I’ll do some brain storming as well and post when I can.

    Like

    Comment by Cubby | November 1, 2009, 12:45 AM | Reply

  2. I have some idea’s but they are mostly to use locally…. I don’t know if I should post them, or send them to sean via email. Please let me know. Thanks!

    Like

    Comment by Cubby | November 1, 2009, 4:16 PM | Reply

  3. Any ideas are welcome! Thank you

    Like

    Comment by Beast | November 1, 2009, 5:27 PM | Reply

  4. Thank you Beast. I assume that means I can post away. I’m working on a list of idea’s and will hopefully have them together later this evening or sometime Monday.

    Like

    Comment by Cubby | November 1, 2009, 6:50 PM | Reply

  5. CeeA … What about a Chinese Auction? GREAT fundraiser!
    Businesses will donate things and Nursing home residents love to make things(crochet blankets)etc. and donate to help people,esp. kids and it makes them feel useful.
    Pizza parlors donate pizzas,restaurants donate meals,food stores donate food baskets,businesses donate gift certs.ALL BUSINESSES,drugstores,hair salons,manicures.barber shops,pet stores,the possibilities are endless!
    YOU can even donate an hour to “babysit”an elderly grandparent,so the parents can do holiday shopping
    THAT’S the great thing about these auctions,you only put a ticket in the prize/service that will suit you! AND YOU don’t have to LAY OUT your OWN MONEY! It’s a win/win situation … WHAT A GREAT CAUSE,people will love to be a part of that,esp. around the holidays!
    TRUST ME GO FOR IT!!

    Like

    Comment by Terisa | November 1, 2009, 8:58 PM | Reply

  6. Here are a few idea’s.

    If you can solicit local businesses to agree to donate 10% of their proceeds for a certain amount of time, say a day or group of days, with a ‘coupon’ either printed from your hope for stacy site, a church bulletin, or the local newspaper. I’ve seen this done for school fundraisers. Some business’s to solicit, and it would be GREAT to get a list of several, Oil Change places, 7-11, fast food and family style restaurants.

    In addition to Terisa’s idea above, a variation, so to speak. A community ‘garage’ sale. Everyone donates items and all proceeds go to the fundraiser. I realize the weather isn’t ideal for an outdoor garage sale, but perhaps a church will allow space where they might have bingo or something similiar. (It might also help to have volunteers with vans or SUV’s willing to pick up larger items.) If you have a consignment or resale shop that pays for items, you may be able to make some additional money ‘selling’ any left overs.

    If you happen to know anyone with a snow plow, or snow blower, perhaps that might be an avenue to offer services for a donation, or even solicit businesses who offer those services to advertise on your hope for Stacy site, and offer 10% or a flat donation for those customers using their services who found them through your site. You can probably brain storm a variety of businesses within your community who can benefit from ‘advertising’ on the “hope for stacy site” by offering a percentage or donation to the cause. (brain storming off what we did for our real estate clients to keep in touch and continuously ask for referals.) This is a BIG plus for businesses, as you are offering them advertising, bringing them potential business.. and it offets their advertising cost so it’s a win-win situation. You can actually do it for almost any kind of business, whether they offer goods or services.

    As I think of more, I will post them. Good luck! We are praying for you Stacy!

    Like

    Comment by Cubby | November 3, 2009, 10:57 AM | Reply

  7. With regards to soliciting businesses for ‘advertising’ as I suggested above, perhaps your local church would be willing to include a flyer or add to their church bulletin the list, so the offer is not only available through the Hope for Stacy site. Also, you might ask the principal, or school admin, for the schools your children attend, if they would be willing to send a flyer home to include a list of businesses willing to participate. That will help get the word to more people.

    Of course their is some leg work, to soliciting businesses, but it would be beneficial to them for the advertising.

    hth… and still thinking of more idea’s.

    Like

    Comment by Cubby | November 3, 2009, 11:01 AM | Reply

  8. http://www.cnn.com/2009/HEALTH/12/18/stem.cells.heart/index.html

    STEM CELLS FOR HEARTS

    Like

    Comment by CeeA | December 19, 2009, 2:37 AM | Reply

  9. I THINK ANY COOK BOOK WE DO SHOULD BE WELL ROUNDED AND NOT NARROWLY LIMITED. WE COULD LOSE MANY PEOPLE – MAYBE. FOR INSTANCE SOME THAT ARE DIABETIC AND DON’T EAT SWEETS, OR THOSE ON A DIET, OR THOSE WHO DON’T *LIKE* SLOW COOKERS, ETC. A BROAD “COLLECTION”, AN ALL ENCOMPASSING COOK BOOK, OF CONTRIBUTORS FAVORITE RECIPES, USING THEIR NAMES MIGHT BE THE WAY TO GO. WE SHOULD COLLECT RECIPES FROM MANY PEOPLE.

    I DO THINK WE MIGHT BE LEAVING THIS HOUSE THIS YEAR … I WILL BE BUSY AND TIRED HERE. TOM IS STILL LIVING IN BED AND POOR LUCY IS STARTING WITH OLD AGE PROBLEMS NOW.

    IS THERE ANYONE OUT THERE WHO CAN HELP IN THIS PROJECT? THERE ARE PUBLISHERS TOO THAT MUST DO THESE LITTLE FUN RAISER COOK BOOKS I THINK, AT REASONABLE RATES.

    STACY, STACY, STACY!!!

    Like

    Comment by HEART 10 | December 19, 2009, 2:56 AM | Reply


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