Hope For Stacy – Car Wash Oct 10-11 @ The Brick 1525 Pitt st Cornwall
I’d like you all to meet my daughter Stacy. In almost every respect she is a normal 18 yr old going to high school, planning for college, and occasionally doing things that Mom and Dad are not so crazy about. Stacy has a wild sense of humor and is a very strong young woman, and she even likes Bob Marley. But all is not right in Stacy’s world. She was born with SMA. Spinal Muscular Atrophy is a form of MD and degenerates motor neurons. Basically it is like a road block at the spinal cord that prevents any stimulation of muscle growth. Stacy is only capable of doing the most simplest of tasks. But even brushing her teeth or drinking a glass of water has it’s challenges. Most of what we all take for granted is beyond her ability, and it always has been.
We have been following the introduction of stem cell treatments for some time now, and though they are not available in Canada or the United States yet they are available in other places. The cost of these treatments is not cheap, and we have told that it involves 4 injections over a period of 4 weeks. Another place one 3 hour treatment every 6 months. After speaking to other people who have made the journey and had positive results we have decided to try and make it possible to provide Stacy with this opportunity to get “something” more than what she has. Even if it is the ability to roll herself over in the middle of the night. Any more independence that she can get would be a miracle.
Increased range of motion and overall strength and energy has been reported after receiving the injections. But the cost of this treatment is out of our capabilities. Including airfare, lodging and the injections themselves it is upwards of $26,000-$40,000. We have started a fund at the Royal Bank under the name “Hope For Stacy” and donations can be made to that fund at any RBC.
Over the next year or so we will be holding many such events and fundraisers to try and provide Stacy with this opportunity. We need volunteers, equipment, t-shirts, and all sorts of various items to put these types of things on. If you would like to get involved please contact me at email@example.com or show up at one of the events we have planned, we could use all the help we can get.
A very big thank you to Domino’s Pizza 1916 Pitt St who have generously offered to donate some pizza for the volunteers. Your support is greatly appreciated! And to Brian at THE BRICK 1525 Pitt St without you it would not have been possible. When other people and locations said no you stepped up and offered us a great location, thank you so much!
The local story in the paper has generated a lot of interest in Stacy’s story. Ron Begg has offered to interview Stacy on his Cogeco cable TV program. Jason Christoff, who is the owner of “Physical Limits” has offered some memberships to aid Stacy’s cause. One of our readers and good friend has pledged 2 one week get-away packages to their villa in Mexico. We will be planning a dance and other larger events later in the year. See you all this weekend at the car wash!
October 10th. The Car Wash went very well with a lot of people stopping to give their support for Stacy and we raised $240 today! Thank you everyone that stopped by! We will be back out there tomorrow to do it all over again and hopefully do even better! We are on the way to making this a reality for Stacy.
October 14th. Stacy was on live Cable TV today. The program is called “I Begg your Pardon” and airs on Cogeco. Ron was nice enough to have us on the program and has pledged his support to help Stacy reach her goal. We appreciate the support and are very grateful 🙂